A majority of people who have recovered from Covid-19 have experienced some form of stigma, a𒐪ccording to a study conducted by the ICMR during the first wave of the pandemic.
The pandemic triggered stigma and discrimination against individuals infected with or vulnerable t▨o the SARS COV-2 virus due to the unpredictable nature of the disease, a dearth of reliable information about its transmission and prevention, and the fear of contracting it.
Against this background, the multi-centric mixed-methods study, conducted in 18 districts in seven states representing the major regions of India, explored the stigma perceptions, experiences, and factors associated wꦓith the same among communities and individuals who recuperated from Covid-19 during the first wave of the pandemic, said Dr. Saritha Nair, a senior scientist at the National Institut𓂃e of Medical Statistics (NIMS).
The study also assessed the knowledge of the caus♒e, modes of transmission, risk perception, preventive methods of Covid-19, and perception of mitigation measures of the stigma related to the same.
The results of the quantitative study showed th🐬at more than 60 percent of the participants were aware of the correct cause, modes of transmission, and preventive measures of Covid. This could be due to the dissemination of key messages on the modes of transmission, preventive measures, and signs and symptoms by the government, said Dr. M Vishnu Vardhan Rao, Director, ICMR-NIMS.
"A majority (80.5 percent) of the Covid-recovered participants from study sites reported to have experienced at least one fᩚᩚᩚᩚᩚᩚᩚᩚᩚ𒀱ᩚᩚᩚorm of stigma. Of the💎 1,978 respondents from the community, 51.3 percent reported severe stigmatizing attitudes towards those diagnosed with Covid-19," Rao said, highlighting the findings of the study.
The experience of stigma varied across the study sites. The fear of the infection and a lack of adequate knowledge were observed to be ꧑associated with the stigma, Nair said. The findings highlighted the need for timely interventions to mitigate Covid stigma by increa🤪sing awareness and dispelling misconceptions on the modes of transmission and measures of prevention of the disease, she said.
Additionally, the study also suggested the need for psychosocial interventions to deal with the negative impact of the st𒆙igma on the individuals and families affected by Covid. This multi-centric mixed-methods study was undertaken by the ICMR-NIMS in collaboration with six institutes of the Indian Council of Medical Research (ICMR) and the Tata Institute of Social Sciences, Mumbai.
After obtaining the informed consent, the information was collected telephonically from individuals who had recovered from the infection and individuals from the community (𒉰aged above 18 years and not infected till the time of the data collection) from August 2020 to February 2021.
Information on demographic, socio-economic characteristics, Covid-19 knowledge, risk perceptions, and stigma (assessed through stigma scales developed to understand experiences of Covid-recovered indivi𝓰duals as well as perceptions of the community on stigma attitudes) was collected, using a structured interview schedule from 2,281 respondents (1,978 from 💃the community and 303 recovered from Covid).
The mean age of the Covid-recovered respondents (n=303) was 38.06 years, 69 percent were married, 61.5 percent had education up to the higher secondary level or above, and 41.6 percent w✃ere employed in the formal sector and 63 percent belonged to urban areas.
The mean age of the community respondents (n=1978) was 36.35 years, 71 percent were married, 54.3 percent had education up to the higher secondary level or a🎀bove, 32.8 percent were employed in the formal sector and 51 percent lived in rural areas.
"The situation has changed a lot since the first w🎐ave with awareness on Covid-19 transmission, prevention, treatment options, anܫd government interventions to mitigate the stigma related to the disease," Rao said.
"The research brief was published on the ICMR website fo🦩r wider dissemination of strategies for miti꧅gation of Covid-19 stigma and we are in the process of publishing the detailed findings in a peer-reviewed journal," Nair said.
